Sickle cell disease Avascular necrosis (1567)

Key points below

What is avascular necrosis?

Avascular necrosis (AVN) is a disease that affects the bones. The tops of the bones should be round.

With AVN the bones change shape and become somewhat flat.
There is less blood flowing to those areas. This slowly causes pain to the area.
It is most common in the hips and shoulders. It can happen in any large joint.

What are the symptoms?

Constant hip, thigh or shoulder pain. The pain may feel different from sickle cell pain.
If AVN is in the hips, you may notice a limp or may have a hard time walking. It may also be hard to move the legs in some positions.
If AVN is in the shoulders, the arms may not be able to move in some positions such as lifting the arm over the head.

If you suspect AVN, please talk to your child's provider.

What will happen if the doctors think there is AVN?

X-rays or an MRI of the hip(s) or shoulder(s) will be done.
Pain medicines may be needed.
A bone doctor, called an orthopedic doctor, will need to be seen.

ALERT

Call the doctor, nurse, or the Sickle Cell Center if you have any concerns or if:

You think you have AVN
There are special health care needs not covered by this information.

Sickle Cell Clinic: (414) 266-2420, Monday – Friday, 8:00 AM – 4:30 PM. Ask to talk with a nurse.
After hours, weekends or holidays, call (414) 266-2420. You will be transferred to the operator if your call is urgent. Ask for the hematologist to be paged.