In this section
PHACE syndrome
- Diagnosing PHACE Syndrome
- The faces of PHACE syndrome
- PHACE Syndrome Handbook
- Contributions and Acknowledgements
- Introduction to PHACE Syndrome
- Infantile hemangiomas and PHACE Syndrome
- Abnormalities of the head and neck arteries (Cerebrovascular Abnormalities)
- Structural brain abnormalities
- Neurologic abnormalities
- Congenital heart abnormalities
- Eye abnormalities
- Ventral or midline abnormalities
- Airway compression
- Endocrine abnormalities
- Auditory abnormalities
- Intracranial hemangiomas
- PHACE Syndrome registry
- Our PHACE specialists
Contributing authors, contact information, and acknowledgements
PHACE Syndrome Handbook: A Guide for Parents and Physicians
Sponsored by Pediatric Dermatology at the Medical College of Wisconsin and the Birthmarks and Vascular Anomalies Center at Children's Wisconsin.
Contributing Authors and Editors
Yvonne Chiu, MD
Associate Professor of Dermatology, Medical College of Wisconsin
Dermatology Residency Program Director, Medical College of Wisconsin
Beth A. Drolet, MD
Professor of Dermatology and Pediatrics, Medical College of Wisconsin
Vice Chair Department of Dermatology, Medical College of Wisconsin
Medical Director of Dermatology, Children's Wisconsin
Medical Director of the Birthmarks and Vascular Anomalies Center, Children's Wisconsin
Clinical Vice President of Ambulatory Services, Children's Wisconsin
Chief Experience Officer, Children's Wisconsin
Stephen R. Humphrey, MD
Assistant Professor of Dermatology and Pediatrics, Medical College of Wisconsin
Dawn Siegel, MD
Associate Professor of Dermatology and Pediatrics, Medical College of Wisconsin
Medical Director of the Neurofibromatosis Clinic, Children's Wisconsin
Director for the International PHACE Registry, Medical College of Wisconsin
Nicole S. Stefanko, BA, BS
Pediatric Dermatology Research Fellow, Medical College of Wisconsin
To make an appointment with a PHACE syndrome specialist at Children's Wisconsin:
Call 414-266-3727 or email EBongert@childrenswi.org or pedsdermresearch@mcw.edu to reach the Nurse Clinician for the Birthmarks and Vascular Anomalies Center.
Location:
Birthmarks and Vascular Anomalies Center
Children's Wisconsin
9000 W. Wisconsin Ave. Suite B260
Milwaukee, WI 53226
To learn more about current PHACE syndrome research at the Medical College of Wisconsin:
Call 414-955-2846 or email pedsdermresearch@mcw.edu to reach the Clinical Research Coordinator in the Pediatric Dermatology department.
Location:
Pediatric Dermatology Department
Medical College of Wisconsin
8701 Watertown Plank Road
TBRC, 2nd floor, Suite C2010
Milwaukee, WI 53226
To enroll in the global PHACE syndrome registry and participate in in-depth genetic research on children with PHACE syndrome and their families:
Call 414-955-2846 or email pedsdermresearch@mcw.edu to reach the Clinical Research Coordinator for the Genetic Analysis of PHACE Syndrome registry.
Copyright © 2018 by the Dermatology Department of the Medical College of Wisconsin
This book was made possible with support from the PHACE Syndrome Community and the PHACE Foundation of Canada