In late June, my family and I joined 42 other patients and families from children’s hospitals across the nation in Washington, D.C., as we spoke with members of Congress to tell our stories and explain why investing in children and their well-being is so important. The trip was part of the Children’s Hospital Association’s Speak Now for Kids Family Advocacy Day, and we were so proud to represent Children’s Hospital of Wisconsin.
While in Washington, we met with Sen. Ron Johnson, Sen. Tammy Baldwin, Rep. Sean Duffy and Rep. Ron Kind to discuss the importance of federal policies and programs that provide Avery and millions of other children access to high-quality pediatric care. That access saved Avery’s life from a rare genetic disorder that causes his blood vessels to become tangled.
One of the most important programs is Medicaid, which has allowed us to focus on Avery’s care and ensure that he has access to the pediatric specialists he needs. The Wisconsin members we met with were receptive to our story and our message, and we enjoyed meeting other families and experiencing our nation’s capital for the first time. Avery is our little superhero, but members of Congress are “superheroes in suits” by supporting families like ours when they protect programs that help keep kids healthy.