Research and advocacy

Research

• Guidelines for primary care providers to manage Celiac Disease
• Guidelines to assist Endocrinologists in screening patients with Type 1 Diabetes for Celiac Disease
• Genetic risk factors for patients with both Type 1 Diabetes and Celiac Disease
• Studying the appropriate use of labs and biopsies to detect and monitor Celiac Disease 
• Studying the efficacy of different types of education on gluten 
• A patient registry to better understand the clinical course of children with Celiac Disease
• A biobank of tissue and blood samples to better understand the causes of Celiac Disease
• The following is research conducted by our team:
  
  • Celiac disease in North America: What is the current practice of pediatric gastroenterology providers? - PubMed (nih.gov)
  • Variability in Celiac Serology Testing by Provider Type: A Single-Center Experience - PubMed (nih.gov)Evaluation of In-Person, Gluten-Free Diet Education for Children With Celiac Disease - PubMed (nih.gov)
  • Pediatric Celiac Disease and Eosinophilic Esophagitis: Outcome of Dietary Therapy - PubMed (nih.gov)

Advocacy

• The goal of our support group is to help our patients and families connect with others who are living with Celiac Disease and gluten sensitivity. The topics include our annual gluten free cookie exchange, gluten free cooking classes, and discussions about the psychosocial aspects of living with a chronic disease. It’s a great opportunity for families to ask questions and share ideas, stories, and advice.
• We have a Celiac Family Advisory Board, which helps guide our program and host 10+ events per year for patients with Celiac Disease and their families.

• Due to our expertise, we are called upon to educate healthcare providers across the county on the gluten free diet to assist them in better serving their patients with Celiac Disease and gluten sensitivity. 
• Through generous support from the Mechanic Family, we were able to build an online education module for Celiac Disease. We provide it to all our patients, and now have made it free to the public via the Celiac Disease Foundation. Patient Brochures & Courses | Celiac Disease Foundation

• We work with school districts across the state to educate staff on how to safely prepare gluten free meals for students who are following a gluten free diet. We provide education for teachers and school nurses on how to better care for and support their students with Celiac Disease. We also fill out all forms needed for school, including college.

• Our team created an online teaching module about the nutritional implications of Celiac Disease.  This will be used internationally to help pediatric gastroenterologists in training.