In this section
Advocacy
- CAN Advocacy
- Children's Advocacy Network
- Advocacy days and patient stories
- Advocacy news
- Advocacy resources
- Legislative work
- Medicaid Matters
- Meet Aiden, Elijah and Axel
- Meet Camden
- Meet Caroline
- Meet Charlie
- Meet Daijah
- Meet Ellie
- Meet Emma and Tay
- Meet Emmett
- Meet George
- Meet Lici
- Meet Prince, King and Idanna
- Meet Rylan
- Meet Sammy
- Meet Solomon
- Meet Xavier
- Share your story
Meet Daijah from Milwaukee
When Daijah was born, the newborn screening blood test revealed that she had Sickle cell disease type SS, a severe blood disorder. Daijah experiences frequent pain, anemia, infection and low hemoglobin levels. Daijah sees the care team at the MACC Fund Center at Children’s Wisconsin. In2023, Daijah had a silent stroke and has since required monthly blood transfusions and medications to keep her healthy. Daijah is on the donor list for a bone marrow transplant, which would be a life-changing step in her journey. Without Medicaid as their health insurance, her family doesn’t know where they would be, physically, emotionally or financially. From her monthly blood transfusions, visiting her doctors every 3 months and 12years of regular medications, Medicaid has helped Daijah’s family focus on her survival.