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Advocacy
- CAN Advocacy
- Children's Advocacy Network
- Advocacy days and patient stories
- Advocacy news
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- Legislative work
- Medicaid Matters
- Meet Aiden, Elijah and Axel
- Meet Camden
- Meet Caroline
- Meet Charlie
- Meet Daijah
- Meet Ellie
- Meet Emma and Tay
- Meet Emmett
- Meet George
- Meet Lici
- Meet Prince, King and Idanna
- Meet Rylan
- Meet Sammy
- Meet Solomon
- Meet Xavier
- Share your story
Meet Lici from Racine
Lici loves playing with her younger sister, listening to music and going for walks outside. When Lici was young, she was diagnosed with an ultrarare neurodevelopmental disease associated with the CAMK2B gene. Lici experiences developmental delays, uses a wheelchair and is fed through a J-tube overnight. Lici’s mom had trouble finding dental providers near their home that would care for Lici due to her complex health needs and her Medicaid insurance. In addition to visiting Children’s Wisconsin Dental Clinic, Lici also sees several specialists, including GI, ophthalmology, neurology and her pediatrician at the Kenosha Clinic. Without her Medicaid coverage, her mom doesn’t know how they would be managing all of her health care needs, including her three recent surgeries. With Lici’s extensive health care needs and countless appointments, her mom, as Lici’s primary caretaker, isn’t able to work full-time. Private insurance often does not cover the formula or the supplies she needs; however, Medicaid covers everything Lici needs to be healthy.