In this section
A congenital hemangioma (hem-an-gee-o-ma) is a vascular lesion that is present and fully grown at birth. Doctors may diagnose a congenital hemangioma on a prenatal ultrasound.
Before the year 2000, these lesions were grouped in with infantile hemangiomas. We now understand that congenital hemangiomas look very different under the microscope and behave very differently than infantile hemangiomas.
- Are most often found in the skin and are usually superficial (close to the surface of the skin). They also can be found in the liver
- Are made up of thin-walled, low- to high-flow blood vessels. (Doctors can see these vessels using ultrasound technology)
- Do not grow after birth and some may even shrink
- Occur equally in males and females
- Are much less common than infantile hemangiomas
What does a congenital hemangioma look like?
- They are usually round or oval
- They are pink to blue in color with pale-colored skin (pallor) around them
- The involved area is raised above the skin
- They feel warmer to the touch than the rest of the body
- Congenital hemangiomas most often appear on the head, neck, or limbs of the body
What are the types of congenital hemangiomas?
Congenital hemangiomas can be broken down into two categories:
- Noninvoluting congenital hemangioma
- Rapidly involuting congenital hemangioma
Noninvoluting congenital hemangiomas (NICH)
The characteristics of this type of congenital hemangioma are:
- They are present at birth and grow as your child grows
- They do not go through a regression (shrinking) phase
Treatment options for NICH
A NICH may be surgically removed. If the NICH is large, a radiologist may need to perform an embolization procedure prior to surgery to help control the bleeding. Embolization helps decrease the blood flow to a vascular lesion in order to reduce blood loss during surgery.
Rapidly involuting congenital hemangiomas (RICH)
RICHs also are present at birth. However, they go through a rapid regression phase and may be completely gone by the time your child is 12 to 18 months old. Surgery may be necessary even after regression of the tumor to reduce loose skin or scarring.
What causes a congenital hemangioma?
There is no known cause of congenital hemangiomas. Children's Wisconsin is doing research to find causes of vascular malformations and tumors, including congenital hemangiomas.
Treatment options for congenital hemangiomas
Treatment options for your child will depend upon the size, type and location of the lesion.
- Watchful waiting- If your child’s lesion is shrinking, the doctor may choose observation instead of treatment.
- Surgery- Surgery to remove the lesion is the best option if there are complications such as skin breakdown and bleeding. Your child’s doctor may consult a cardiologist before surgery if the lesion is very large and has significant blood flow through it.
Although there are several effective topical and oral treatments for infantile hemangiomas, these do not work for congenital hemangiomas.
There are a number of potential complications of congenital hemangiomas, including:
- Skin breakdown
- Heart problems (though rare) because of the large amount of blood flow to the lesion
Differences between congenital hemangioma and infantile hemangioma
|Present at birth and potentially diagnosable during fetal development via ultrasound.
|Visible between 2 weeks and 4 months of age.
|Growth is complete at birth, or it may grow proportionately as your child grows.
|Grows rapidly for about 6 to 12 months (average is around 8 months).
|Occurs equally in males and females.
|Occurs in five females for every male.
|Less common than infantile hemangiomas, but not rare.
|Common (4-5 percent incidence in newborns).
|Rapid or no involution (shrinking).
|Slow shrinking that takes months or years.
Get a second opinion
It's important to know what your options are. We can provide expert opinions to verify or give more information about an initial diagnosis. Contact us today.