PHACE Syndrome registry resources

Children's Wisconsin

Children's is home to the PHACE Syndrome registry research study and many of the lead investigators in PHACE research.

• Children's dermatology program
• Children's birthmarks and vascular anomalies program

PHACES Foundation of Canada

This Canadian charity organization is committed to advocating, educating and supporting PHACES Syndrome throughout Canada and internationally.

NOVA

The National Organization of Vascular Anomalies provides information and assistance in the management of hemangiomas and vascular malformations, including PHACE Syndrome.

PeDRA

The Pediatric Dermatology Research Alliance aims to form a solid foundation for pediatric dermatology research.

HIG

The Hemangioma Investigator Group is dedicated to advancing knowledge regarding infantile hemangiomas through collaboration, research, and education.

PHACE Syndrome Community

The PHACE Syndrome Community is a United States non-profit dedicated to serving those affected with PHACE and their family, friends and community.