In this section
PHACE Syndrome registry resources
The PHACE registry has moved to Stanford University School of Medicine.
PHACES Foundation of Canada
This Canadian charity organization is committed to advocating, educating and supporting PHACES Syndrome throughout Canada and internationally.
The National Organization of Vascular Anomalies provides information and assistance in the management of hemangiomas and vascular malformations, including PHACE Syndrome.
The Pediatric Dermatology Research Alliance aims to form a solid foundation for pediatric dermatology research.
The Hemangioma Investigator Group is dedicated to advancing knowledge regarding infantile hemangiomas through collaboration, research, and education.
PHACE Syndrome Community
The PHACE Syndrome Community is a United States non-profit dedicated to serving those affected with PHACE and their family, friends and community.
Contact Birthmarks and Vascular Anomalies Program by email, postal mail, or phone: