PHACE Syndrome registry resources

Children's Wisconsin

The PHACE registry has moved to Stanford University School of Medicine.

PHACES Foundation of Canada

logPHACEFOCThis Canadian charity organization is committed to advocating, educating and supporting PHACES Syndrome throughout Canada and internationally.


logNOVAThe National Organization of Vascular Anomalies provides information and assistance in the management of hemangiomas and vascular malformations, including PHACE Syndrome.


logPeDRAThe Pediatric Dermatology Research Alliance aims to form a solid foundation for pediatric dermatology research.


logHIGThe Hemangioma Investigator Group is dedicated to advancing knowledge regarding infantile hemangiomas through collaboration, research, and education.

PHACE Syndrome Community

logPHACESCThe PHACE Syndrome Community is a United States non-profit dedicated to serving those affected with PHACE and their family, friends and community.

Contact us

Contact Birthmarks and Vascular Anomalies Program by email, postal mail, or phone:

(414) 266-3727

Make an appointment

To make an appointment, call our Central Scheduling team or request an appointment online.

(877) 607-5280

Request an appointment

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