In this section
PHACE Syndrome registry resources
Children's Wisconsin
Children's is home to the PHACE Syndrome registry research study and many of the lead investigators in PHACE research.
PHACES Foundation of Canada
This Canadian charity organization is committed to advocating, educating and supporting PHACES Syndrome throughout Canada and internationally.
NOVA
The National Organization of Vascular Anomalies provides information and assistance in the management of hemangiomas and vascular malformations, including PHACE Syndrome.
PeDRA
The Pediatric Dermatology Research Alliance aims to form a solid foundation for pediatric dermatology research.
HIG
The Hemangioma Investigator Group is dedicated to advancing knowledge regarding infantile hemangiomas through collaboration, research, and education.
PHACE Syndrome Community
The PHACE Syndrome Community is a United States non-profit dedicated to serving those affected with PHACE and their family, friends and community.
Contact Birthmarks and Vascular Anomalies Center by email, postal mail, or phone: