Genetics and genomics support groups

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This page contains links to other World Wide Web sites with information about support groups for parents affected by a birth defect. We hope you find these sites helpful, but please remember we do not control or endorse the information presented on these Web sites, nor do these sites endorse the information contained here.

Alliance of Genetic Support Groups

National Down Syndrome Congress
7000 Peachtree-Dunwoody Road, N.E. Building 5, Suite 100
Atlanta, GA 30324
(800) 232-NDSC or (770) 604-9500

National Down Syndrome Society
666 Broadway
New York, NY 10012
(800) 221-4602 or (212) 460-9330

National Organization for Rare Disorders, Inc. (NORD)
P.O. Box 8923
New Fairfield, Connecticut 06812
(203) 746-6518

Sibling Support Project (for siblings of people with special health and developmental needs)

S.O.F.T. (Support Organization for Trisomy 18, Trisomy 13, and Related Disorders)
2982 South Union Street
Rochester, NY 14624
(716) 594-4621

Living with Trisomy 13

The Compassionate Friends 
P.O. Box 1347
Oak Brook, Illinois 60521
(708) 990-0810

Need assistance?

From out of town? The Access Center can provide assistance in coordinating appointments, insurance, etc. Use our online form or call: (414) 266-6300.