In this section
Genetics and genomics
- About medical genetics
- Chromosome abnormalities
- Genetic services: when, where, how
- Identification, treatment and prevention of birth defects
- Multifactorial inheritance
- Neurofibromatosis and related disorders
- Non Traditional Inheritance
- Rasopathy disorders
- Single gene defects
- Genetics and genomics support groups
- Teratogens
- The difference between a chromosome abnormality and a single gene defect
- Tuberous sclerosis
- Uses of genetic testing
- Programs and services
- Additional resources
- Patient stories
- Become a patient
- Genetic contact us
- Locations
- Our specialists
- For medical professionals
Genetics and genomics support groups
This page contains links to other World Wide Web sites with information about support groups for parents affected by a birth defect. We hope you find these sites helpful, but please remember we do not control or endorse the information presented on these Web sites, nor do these sites endorse the information contained here.
Alliance of Genetic Support Groups
National Down Syndrome Congress
7000 Peachtree-Dunwoody Road, N.E. Building 5, Suite 100
Atlanta, GA 30324
(800) 232-NDSC or (770) 604-9500
National Down Syndrome Society
666 Broadway
New York, NY 10012
(800) 221-4602 or (212) 460-9330
National Organization for Rare Disorders, Inc. (NORD)
P.O. Box 8923
New Fairfield, Connecticut 06812
(203) 746-6518
Sibling Support Project (for siblings of people with special health and developmental needs)
S.O.F.T. (Support Organization for Trisomy 18, Trisomy 13, and Related Disorders)
2982 South Union Street
Rochester, NY 14624
(716) 594-4621
www.trisomy.org
Living with Trisomy 13
www.livingwithtrisomy13.org
The Compassionate Friends
P.O. Box 1347
Oak Brook, Illinois 60521
(708) 990-0810
Need assistance?
From out of town? The Access Center can provide assistance in coordinating appointments, insurance, etc. Use our online form or call: (414) 266-6300.