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Hereditary Disorders of Connective Tissue (HCT) Program
The Hereditary Disorders of Connective Tissue Program (HCT) is part of the Genetics Center at Children’s Wisconsin. We provide diagnosis, education, counseling, treatment and care coordination for children and adults with connective tissue disorders and related issues.
Our team is here for you
No matter what type of connective tissue disorder you or your child have, we can help. We dedicate every day to providing outstanding, individualized care to each of our patients.
We offer a team approach to care
Depending on the type of care you need, we will coordinate care with specialists throughout the hospital. The specialties we work with include:
- Occupational therapy
- Pain management
- Physical therapy
- Rehabilitation medicine
What happens at a clinic visit?
During the first visit to the HCT Clinic, a genetic counselor and doctor will see the child. A detailed medical and family history will be recorded. A physical exam also will be done. The results will be discussed with the family and questions will be answered. The first clinic visit generally takes about 2-3 hours.
A genetic counselor, and doctor or nurse practitioner will continue to see the child during follow-up visits. Medical and family history information will be updated. A physical exam will be done. A follow-up visit generally takes 1 to 2 hours.
Preparing for a clinic visit
Bring the following to clinic appointments:
- A list of the medications you or your child takes or the medication containers
- His or her current Individualized Education Plan, if applicable
- Your health insurance card
- Any pertinent family history
Check to make sure we have any necessary medical records, including X-rays, from other health care providers. We also may ask you to fill out several forms in advance and bring them along to your clinic appointment.
Who will my child see?
A genetic counselor and a physician or nurse practitioner will see your child.
Children's Wisconsin is a teaching hospital and many of our specialists train other doctors to care for kids. In addition to your child's main health care providers, you may see the following:
- Medical students who are training to be doctors
- Graduate students who are training to be genetic counselors
- Residents who are doctors in specialty training
- Fellows who have completed a residency and are training in another specialty
Your child's main health care providers will supervise the care they provide for your child.
To understand certain genetic disorders, your child may need tests, including:
How to find us
The HCT program is located on the 2nd floor of Children’s Wisconsin’s specialty clinic in New Berlin.
Map and directions
Parking: You can find free parking in the buildings surface lot.
Wisconsin Marfan Regional Symposium
In September 2018, Children's Wisconsin and the Marfan Foundation co-hosted the first-ever Wisconsin Regional Symposium on Marfan Syndrome and Related Conditions.
Access the symposium topics and recorded presentations.