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Frequently asked questions
What should I expect at my first appointment?
How can I help my child get used to wearing a mask?
What if my child has special needs?
How long will it take for my child to get their machine?
How often will I have to follow up after my child gets their machine?
After your child gets their CPAP or BiPAP™, a Sleep Center respiratory therapist will contact you by phone to talk about how your child is doing with wearing CPAP or BiPAP™. We may be able to solve simple problems over the phone.
Your child will be scheduled for a Positive Airway Pressure clinic appointment to see their doctor or nurse practitioner about 31 to 90 days after starting their therapy. This appointment is very important for your child to get the best health care, and some insurance companies require this appointment to continue paying for the machine.
After your first appointment, your doctor or nurse practitioner will discuss with you when to follow up next. Most children and teens will need to follow up every six months, but they may need to be seen more often in the beginning until they are able to use their therapy regularly.
What should I bring to my appointment?
What if I have to cancel or change my appointment?
Insurance companies require patients to have an appointment in clinic within 31-90 days after starting CPAP or BiPAP™. If your child cannot make their appointment, it is very important if you call your CPAP team right away your CPAP team at (414) 266-4924. We can help you find another appointment within that time period.
All other appointments can be rescheduled by calling Central Scheduling at 414-607-5280.
How do I contact my child's CPAP team at Children's?
How often does my child need to wear their CPAP or BiPAP™?
How do I track how often my child uses their machine?
CPAP and BiPAP™ manufacturers have apps that you can download on your smartphone or tablet. When you create an account and link your child's machine (by the serial number), you will be able to view their usage information. View more information if your child has a ResMed machine.
View more information if your child has a Respironics machine.
How do I clean my child's equipment?
How do I contact my child's home equipment company?
How do I set my child's CPAP or BiPAP™ machine up?
How often do I order new supplies?
You should call your child's home care company to order supplies. Some companies also have online ordering or an automatic supply option. Please ask them whether they have those options if you're interested.
When to replace worn out supplies:
- Mask cushion (nasal pillows): Every 1 month (as needed)
- Mask frame: Every 3 months
- Mask headgear: Every 6 months
2. CPAP or BiPAP™
- Tubing: Every 3 months
- Water chamber (humidifier): Every 12 months
- Air filter: Every 2 weeks (2 per month)
What if my child's skin is red or sore from their mask?
This can be a common side effect from CPAP or BiPAP™ therapy. If your child has red marks that fade within an hour or two, this is usually normal. Sometimes loosening the straps slightly can reduce red marks. A good rule of thumb is that if you can't fit two fingers under the straps on either side of the face, then the mask is too tight. If your child's mask is more than 3 months old, order a new mask from your home care company. An old mask can cause skin redness.
However, if you notice red marks that last many hours, open sores or blisters, or a rash, please call our CPAP team right away at (414) 266-4924.
What if my child's mask is leaking or not fitting well?
Mask fit is one of the most important parts of CPAP or BiPAP™ therapy. Small adjustments to the headgear straps can stop some leaks. To troubleshoot mask fit, put your child's mask on and attach the tubing. Next, run the "mask fit" feature to check if the mask is sealing. (Check the machine manual for instructions on how to use this feature.)
If you feel a leak, adjust the headgear straps on both sides slightly tighter, making sure that the straps are not too tight. You can try to lift up on the mask cushion and let it gently rest back on the face to activate the seal.
If these suggestions don't fix the leak, please call our CPAP team at (414) 266-4924.
What if my child has a dry nose or is getting nosebleeds?
This can happen due to dry air from the CPAP or BiPAP™ pressure flowing through the nose. Often increasing the humidity setting can help or resolve this problem. If you need help with increasing that setting, you can call your home care company or our CPAP team at (414) 266-4924.
If you have already tried increasing the humidity, you could try an over-the-counter nasal saline spray or gel (like Ayr® gel which is approved for use with CPAP or BiPAP™) before bed and in the morning. Do not use Vaseline or petroleum-based products.
If your child gets a nosebleed that won't stop, seek medical attention.
What if my child has a dry mouth?
Take a sip of water to see if that helps.
If your child has a nasal mask: If your child has a nasal mask and complains of a dry mouth, this means that the mouth is coming open during sleep. Sometimes this is due to a stuffy nose and a common cause of a stuffy nose is dry air. (see question above) If your child has been diagnosed with allergies, make sure that they are taking the allergy medication their doctor or nurse practitioner prescribed. If the above options don't work, your child may need to try a full face mask that covers both the nose and the mouth. You can call our CPAP team at (414) 266-4924 to see if that would be an option for your child.
If your child has a full face mask: Try increasing the humidity setting. If you have already increased the humidity, check for a mask leak. If there is a leak, the machine will try to make up for it by blowing more air. This can use up the water in the humidifier too quickly. If the above options don't work, please call our CPAP team at (414) 266-4924.
What if my child complains of a sore stomach or gas in the morning?
Should I purchase a high tech cleaner for my child's CPAP or BiPAP™ machine?
My child has a CPAP or BiPAP™ machine and they are struggling to use it. What should I do?
It can take some time to adjust to wearing a mask at night. Some children need extra time and practice. Some helpful tips are:
- Have your child use the machine every day. If they only use it a few times per week, it is unlikely that they will get used to it.
- Be proactive in reminding your child and helping them. Even teenagers will need support and reminders from their parents to be successful in getting used to CPAP or BiPAP™.
- Try having your child use the machine and mask while awake, during a favorite quiet activity (like playing a game, watching TV, or reading a book) for about 20-30 minutes. This can help them get used to the feeling of the mask or the pressure.
- Talk to your child or teen and ask them what exactly bothers them about the mask or machine (for instance, "it's hard to breathe out" or "the mask hurts my nose"). Then call your CPAP team at (414) 266-4924 for ideas on how to make it more comfortable.
How do I know if the CPAP settings need to be adjusted? Or if my child needs another sleep study?
What is the difference between CPAP and BiPAP™?
- CPAP is set at a pressure that stays the same when a child breathes in and breathes out.
- BiPAP™ allows us to adjust the settings even more for your child. BiPAP™ gives extra support when a child breathes in. The BiPAP™ can also be set with a breathing rate to provide a different kind of support if a child has week muscles or has pauses in breathing.