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Next steps survivorship program
As a survivor, or a parent of a survivor of cancer or bone marrow transplant (BMT), you may wonder how diagnosis or treatment will affect you or your child’s health and well-being in the future. When cancer treatment is over, our relationship with you continues.
Our survivorship program was established in May 2001 and sees over 200 survivors every year. The program helps patients and families to identify and monitor possible late effects, educates on ways to maintain a healthy lifestyle based on risk factors, and empowers survivors to advocate for their health.
Our goal is to help survivors live happy, healthy lives.
Why choose our survivorship program?
- Our patient care leads the nation. Our staff and providers are some of the best-known cancer survivorship experts in the country, and their continued research informs the care we provide to families every day.
- A team approach. Our multidisciplinary team includes doctors, advanced practice providers, nurse educators, psychologists, social workers, schoolteachers and nutritionists – all working in partnership with you and your primary care doctor.
- Community support. Our program offers a survivorship community navigator, a unique role that helps families access educational, social and job resources in their own communities.
- Fertility support. Our fertility navigator has the skill and experience to help patients who are considering having children now or in the future.
- Patient education and advocacy. Survivor empowerment to advocate for future health care needs by providing education; a passport, which is a wallet size summary of care with long-term follow up recommendations; and support to transition into primary care.
- Research innovation. Enhance and expand research initiatives focused on survivorship while actively working with Children’s Oncology Group and Pediatric Blood & Marrow Transplant Consortium.
Our survivorship programs
Bridge to next steps program is a program that helps patients and families as they transition from active treatment into post-therapy care.
The end of cancer treatment is an emotional time for patients and families. During the transition period, we help to prepare for your child’s life after cancer treatment, and also reconnect you with your primary care provider to build care and support beyond cancer care.
The program consists of two specialized visits where you will meet with a survivorship provider and a psychologist to provide education, summary of care, and support.
Survivorship care (Next Steps Clinic) is a long-term follow up program that cares for cancer and BMT survivors who:
- Received care at Children’s or elsewhere
- Were diagnosed before age 30, regardless of current age
- Completed treatment a minimum of 2 years ago
- Received a bone marrow transplant more than two years ago
Team members provide specialized care and information needed to monitor and manage possible late effects of treatment. Visits are individualized to each patient, and may include a variety of team members. Care includes:
- Educating survivors about the therapy they received and recommended follow up
- Creating a plan to address possible effects of treatment
- Giving guidance on healthy lifestyle and good nutrition
- Connecting survivors with community resources
- Working with survivors, their families and their primary care doctor to meet ongoing needs
Helpful survivorship resources
- Long-term follow-up guidelines for survivors of childhood, adolescent, and young adult cancers from the Children’s Oncology Group
- Young adult oncology group
This group meets monthly to support adolescents and young adults who are dealing with cancer. The group is open to people who are currently being treated or have been treated in the past, either at Children’s or elsewhere.
There are many scholarships available for cancer survivors. We've put together a list of many of them here.
Survivorship community navigator
- Jocelyn Morin, MPH
- Julie Nichols, RN, BSN
- Michelle Honeck
- Sabine Larson
- Michael Trocchio
- Teresa Beronja
- Pam Niezgoda
If you need more information or if you would like to make an appointment, give us a call.
Has it been a long time since you’ve been seen? Provide us with your contact information, and our team will reach out to you shortly.
Learn more about the survivorship program
It's important to know what your options are. We can provide expert opinions to verify or give more information about an initial diagnosis. Contact us today.