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Meet Avery, 7, from Arpin, Wisconsin
Avery came to Children's Wisconsin when he was 4 years old after suffering a sudden stroke as a result of a rare genetic disorder, Hereditary Hemorrhagic Telangiectasia (HHT). Dr. Patricia Burrows and her team evaluated Avery and identified arteriovenous malformations (AVMs) in Avery's lung and brain. Avery underwent a scope procedure to treat the AVM in his lung and continues to receive ongoing care to treat his condition.
Avery is energetic and loves running and racing. He wants to be a policeman or fireman when he grows up. While he will struggle with his condition for the rest of his life, his mom says he's a fighter and nothing will slow him down.
"We are grateful for the care and support that Avery and our family has received. I know in my heart that he would not be alive today if it was not for Children's," said Jessica, Avery's mom. She knows firsthand the importance of federal policies and programs like Medicaid that provide Avery and many other kids with access to high quality pediatric care.
The Wilson family shared their story with lawmakers in Washington, D.C. as part of Children's Wisconsin Association's Family Advocacy Day last year.