Adult Congenital Heart Disease (ACHD) Program

ACHD

Whether you were born with congenital heart disease (CHD) and had surgery as a child, or you only recently learned about your CHD, your heart needs specialized care that is different than what you might get from a general adult cardiologist or a pediatric cardiologist.

The Adult Congenital Heart Disease Program at the Herma Heart Institute is here to support you in every stage of your heart journey – we care for patients of all ages from young adults just beginning their transition from pediatric care to seniors managing lifelong CHD. Whether you’re 18 or 80, our experts will support and care for your changing needs.

Why the Herma Heart Institute?

One of the nation's leading programs for ACHD

The Herma Heart Institute is home to the largest ACHD program in the state and works in conjunction with Froedtert & the Medical College of Wisconsin health network to offer the specialized expertise you need to live life to the fullest. Our program is an ACHD Comprehensive Care Center accredited by the Adult Congenital Heart Association, recognizing us as a leader in adult congenital heart disease care and management.

Expert care from specially trained providers  

We have 6 providers with advanced training in adult congenital heart disease, making them exceptionally qualified to provide specialized care to those with ACHD They truly understand your heart’s unique structure, anatomy, and function.

The team has been awarded highly competitive research grants and published nearly 50 Adult Congenital Heart Disease articles in the last decade.

Learn more about our program and providers

Care closer to home

In addition to Milwaukee, our adult congenital heart disease specialists have clinics in other locations throughout the state of Wisconsin and in upper Michigan. Patients can schedule initial assessments and follow-up care at these convenient locations. Evening appointments are available in some locations.

Ancillary services 

  • Healthy Lifestyles Program - A free 12-week program that promotes weight loss through diet and exercise modification. Program participants will receive a pedometer to track steps and access to a mobile app to track diet and exercise and will speak with an ACHD team member weekly to discuss progress.
  • Marfan Syndrome and Connective Tissue Disorders Program - The largest in the state and recognized nationally for its expert care for adults with these rare genetic heart disorders.
  • Webinar series – Free, educational webinars for all adults living with a congenital heart defect and their loved ones, have been archived and can be viewed here. Latest topics and registration details can be found here.
  • Mental health – All ACHD patients undergo a mental health screening at each appointment. If the screening is positive, patients are referred to one of our psychologists. They have extensive experience working with patients affected by chronic illness, specifically those with congenital heart disease. 

Compassionate staff 

Our staff are there for you at every twist and turn in your heart journey, ready to provide support, answer questions and help you feel confident in your health decisions: like what exercise program is right for you, what kind of anesthesia is needed for a non-cardiac procedure, what pregnancy looks like for you, etc.

Here is what a few of our patients have to say about our staff: 

“I have never had a concern, question, or need go unheard by all of the doctors I have seen. I will inevitably face challenges and new obstacles as I age, but I feel very fortunate to have access to the level of care that the Herma Heart Institute has to offer and hopefully will for a long, long time. I am a thriving adult because of the care I have gotten at HHI for the last 25 years." – Marta 

“At my first visit with the ACHD team I immediately knew that's where I belong for medical care. The team does an excellent job of answering all of my questions, and we have a clear plan for monitoring my condition. It gives me great peace of mind to have the Herma Heart Institute team on my side!" – Andy

Contact us ACHD

To make an appointment or talk to an adult congenital heart disease expert at the Herma Heart Institute, contact us or call:

Call (414) 266-6784
Nationally accredited

ACHA Comprehensive Care Center logo

Having met the highest standards for caring for adults with congenital heart disease, our Adult Congenital Heart Disease Program is a leading program in the nation and the largest in the state accredited as an ACHA ACHD Accredited Comprehensive Care Center, the highest designation possible.

Cassi and Steffi’s story

Cassi and Steffi

Meet Cassi and Steffi: Two sisters who were both born with a bicuspid aortic valve and who have been monitored through 7 combined pregnancies in our Adult Congenital Heart Disease Program. 

Read their story